beating-myeloma.org

Interactive Health Communication for longer, better lives.

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Welcome to beating-myeloma.org

Multiple Myeloma Support:

2008 Talk the Talk, Walk the Walkathon Video

2008 Galen Foundation
Talk the Talk, Walk the Walkathon

A non-traditional approach to healing multiple myeloma

Beating-myeloma.org was founded by multiple myeloma survivor David Emerson and is dedicated to helping everyone faced with myeloma manage their health and live longer, better lives. We are a 501c3 tax exempt nonprofit organization and do not sell or benefit from the sale of any treatment.

We invite you to:

We provide an interactive forum for sharing information, advice, and a full spectrum of approaches to confronting disease. Visit the forum and read recent posts, or perform a search to bring up posts on the topic of your choice.

Learn

Beating-myeloma.org is built from the story and unique perspective of our founder David Emerson. Each section of our site contains David's experiences and recommendations. Learn about therapies, side effects, diagnosis, and much more by navigating through the menu to the left of this page.

Learn from other multiple myeloma survivors and caregivers on the forum/listerv. Receive up to date information about therapies, side effects, diagnosis, and other issues by subscribing to one or more of the S.D.I's, our e-newsletters.

Search

Are you interested in a specific topic or therapy? We provide a thorough search engine that will scour our site for the most up to date, relevant information. Go to our search page, or type your inquiry in the box at the top left hand corner of this page.

Join

Our site is built around our membership. Members can post to our forum, request monthly newsletters from David, and subscribe to a daily digest of the forum to be delivered to their email inboxes. Learn more about becoming a member (it's free).

Member Survivor Stories

Reading the stories of each cancer survivor will show you that the path to becoming a cancer survivor is not often straight and narrow, and most often is different for every person. But the moral of every cancer survivor story is to keep fighting. Below is one survivor story from a Beating Myeloma member:

Earl Kielley Survivor Story

Here is my story of how I REVERSED PRE-CANCEROUS PROSTATE CELLS. My story starts with my wife passing away from MM in September of 1998. Hers was a 7 year effort. Fast forward. On approximately January 3, 2003, I had a physical exam, my doctor told me to come back to see him quickly because my PSA was 4.6 (that is an atypical reading for a prostate). He said he wanted to do a biopsy. He did so and found pre cancer cells in my prostate. The condition is called high grade PIN. I was told approximate...

Read Beating Myeloma Survivor Stories...

Forum Posts

Interactive Health Communication helps multiple myeloma survivors and caregivers live longer, better lives. One way to interact with others is by sharing your experience with others and reading about other's experiences on our Forum. Below you will find a couple examples of Forum Posts from Beating Myeloma Members:

b-m.org members (you) and research

All- you may remember that when the subject of genetic testing and myeloma came up, I agreed to do some research on the topic and post the results.Â This research is currently underway.Â Early last week a friend called me to explain that his mother-in...

Posted by: demerson | Read More...

MGUS diagnosis and testing- maximize our Mayo appointment in May-

All-I recieved the below email from Sandy today.Â Sandy is seeking advice about ways to maximize her appt at the Mayo clinic this May. Â Does anyone have any advice for Sandy?Â Especially regarding any sort of testing?Â DavidÂ "Finally, I...

Posted by: demerson | Read More...

Read Beating Myeloma Forum Posts...

SDI Newsletters

These are email newsletters sent to beating-myeloma.org members each month or so that contain current, topical and relevant information on any or all of the following subjects: Therapies, Issues, Side Effects, Diagnosis, and General myeloma issues. Below you will find a couple examples of Beating Myeloma SDI Newsletters:

Issues SDI - Volume 1 Issue 1

In light of this past November's voting day, most of the issues that I thought about were local or statewide but one of the issues that effects the country that has been discussed is the idea of the federal government negotiating drug prices directly with ...