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What is the Dana-Farber Neuropathy Regimen?

Those of us who have been to the Dana-Farber Cancer Institute in Boston were given a handout of supplements and medications that are used to help with the Thalomid and/or Velcade induced peripheral neuropathy. Rich N. has provided the latest update, which he received on August 23, 2006.

Vitamins--Always take with Food

Hi-Dose Multi-B Complex Vitamins with B1, B 6, B12, folic acid and other

B-vitamins

Folic acid should be be 1-2 mg. A list he gave me in April said B6 should be approximately 100mg qd, not to exceed 200 mg

Vitamin E--400 IU daily

Fish Oils-Omega3 fatty acids EPA and DHA

Evening Primrose Oil Capsules (not for me for some reason)

Flax Seed Oil

Amino Acids

Acetyle L- Carnitine--500 mg with food-1-2 hrs before or after twice daily

Alph-Lipoic Acid 200 mg a day with food-1-2 hours before or after

Recommends combination pill-one twice daily, Alpha lipoic acid 200 mg,

Acetyl L Carnitine 500 mg

FOR CRAMPING

Magnesium 250 mg twice daily-may cause diarrhea in large doses

Potassium-2 teaspoons apple cider vinegar

Bananas, oranges

Tonic Water (has Quinine in it)

(My note--see recent warnings on danger from quinine)

PRESCRIPTION MEDS

Neurontin- Start w/ 100 mg 3 times per day gradually work up to 600 mg 3 times per day, can dose as high as 2700 mg per day with physician permission

Elavil 25-50 mg at bedtime

Cymbalta-Start at 20, work up to 60 mg at bedtime

Celebrex 100-200mg (Take only with physician supervision)

Lyrica-75-150 mg twice a day

Lidoderm patch 5%-1 1/2 patches each area of pain, change every 12 hours

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